31
October
2008

The Premmie’s Prayer0

Dear God, as you look down upon us,
We know that you might have to squint.
We’re located here in the NICU:
It’s the nursery that we rent.

There are many alarms and sirens,
Connected to condos and flats.
The nurses tape our booties on,
And dress us in funny hats.

We have a lot in common;
All of us were in a hurry.
For many different reasons,
Our storks came a little early.

Some of us don’t know why,
We bursted out from our bubbles.
We entered into this world,
Never meaning to cause any troubles.

Mummy and Daddy are worried sick
About the odds that we must beat.
Please God, help them to realize,
That seeing us grow is a treat.

Breath by breath, we’ll learn to breathe.
Ounce by ounce we’ll tip the scale.
We’re like a boat in the ocean,
That knows not sink- only sail.

For we are living miracles,
Mummy and Daddy must simply believe,
That you have angels watching over us;
From the time we arrive, till the time we leave.

Author Unknown

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31
October
2008

Halloween 20070

Just copying my entry from this day last year, Halloween 2007. I guess it fits that we were scared out of our minds that this was all really happening!

7.30am tomorrow we have to be at periop for the c/s and our little mans arrival.

It appears my specialist basically said for him to be born, no talk at all about a transfusion today!

All consented and had my talk with the anesthetist, am having a spinal which I am so glad about. I was dreading them saying no I have to be knocked out.

Second steroid is done, bloods are done and sent to the blood bank for blood for Ethan.

NICU have made a special request that I have the c/s as early as possible in the morning for them to be able to get him stablised etc etc.

I just cant believe this has all happened so fast and so early.

So please send lots of prayers for us all

30
October
2008

30/10/20070

The reality of having a prem set in to us exactly 1 year ago today.

Today was the day that i have my first lot of steroids. Although we didnt know exactly that Ethan would be born 2 days later but we knew it was a 99% chance that he would be born.

It was up to the specialist, who had been on long service leave for 12 months. I had not seen him during Ethans pregnancy but he had cared for us during each of our previous pregnancies so knew my history and my complications very well.

It was all up to him to decide, would they deliver a potentially sick 33 weeker or do an intra-uterine transfusion. Today is still clearly etched into my memory. We had to go to the shops on the way home because my bag was not packed…not at all.

As you can imagine today has been full of lots of cuddles and kisses for my little man. I am always left thinking about the what if’s. What if i hadn’t just made an appoint 2 weeks before when the Dr i seen ( the peri’s were at a conference so he was a substitute) said we will see you in 3 weeks - that would have made my next scan at 34 weeks…would that mean we wouldn’t have our little boy

28
October
2008

Brothers0

For everyone out there who always says that they would love to have 2 boys….tonight has been a night of wrestling and destruction!! My poor lounge room doesn’t know what has hit it, there are toys, cars, books and blocks from one end of it to the other.

On the up side though i had 2 very tired little boys who went to bed so so so easy!

Not the best pics but you get the idea!!!

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22
October
2008

1 year ago today0

Its hard to believe that exactly 1 year ago today the journey to having a prem became a reality. It is really not as easy to deal with as i thought it would be. Why should i feel so sad, he was 33 weeks after all…so yeah a prem but not that premmie at all. He done fairly well in the NICU, 1 month isn’t that long either. He is now a robust little cheeky bugger, and though he has his *issues* he is generally a normal almost 1 year old little boy.

So why am i so sad!!! Shouldn’t i be thankful for the precious miracle we have, i should and i am but it is still not the easiest thing to deal with.

Anyway, this is my post from 1 year ago. Well it is actually a diary entry but hey still counts!

Appointment went ok today, all is good in the BP area, hr was fine too. Have to have more bloods done tomorrow at my scan, oh the joys! Although, things weren’t as great as they could have been. One of my results came back pretty high compared to last time. It has remained stable, even dropping a little bit in all my previous tests but my last one from the 4th has gone up from 6.2 to 9.2, which basically means the quantity of the antibodies has got bigger. Not good at all, am really worried about tomorrows scan. Didn’t get much sleep last night and I am sure I wont get much tonight.

To think my normal happy Monday appointment turned into this

1
October
2008

Happy 11 months little man0

11 months of ups and downs, of happy and sad.

I cant believe 11 whole months have passed already.

1 year ago today things started to take the downhill path that would eventually lead to an early arrival.

1 year ago today I was 29 weeks pregnant and having my regular scan. This scan showed excess fluid. My peri wasn’t in and the guy instantly went to thinking i must have GD. Excess fluid means GD..even if the baby itself isn’t big/is right on the 50th percentile. My peri wouldn’t be back for a week due to attending a conference overseas (

1 year ago i made my booking for the glucose tolerance test (the 3 hour one!)

Still in my mind a whole year later, i still do wonder if that excess fluid was an early indicator that you were getting sick.

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