Mothers Day

May 12th, 2008

Last year was my first Mothers Day.
It felt much like any other day in the weeks before or after it - trekking in to the hospital, reading the chart to see how much Talia weighed and how much milk she’d been fed, watching the nurses take care of my baby. It was hard sometimes to even feel that she was really mine, when all I could do was change the occasional nappy, express my milk via a machine and hope for a cuddle once a day or every second day. I worried about her, I shed plenty of tears.
Taking her home and leading a normal life seemed a distant dream.

Mothers Day 2007

This year it is the NICU which is a dream, dimmed by time but not forgotten.
Pictures of premature babies on the news bring tears to my eyes but for us, so much has taken place, so much has changed in a year. My beautiful daughter finally allowed to go home. Breastfeeding, settling, weigh-ins. First smiles, tummy time, growing out of clothes, starting solids. Sitting, rolling, turning the pages of a book. Our first birthday celebrations.

Another Mothers’ Day.
We shared it with my mothers’ group, holding a joint first birthday party for our babies, born between March 20 (Talia’s birthday) and June 22 (the day Talia left hospital) last year. I made party food, sewed a gift and helped decorate the venue. Yes I am a real mum - I can walk the walk (while pushing a pram) and talk the talk and have the t-shirt to prove it (almost certainly with baby food smeared onto it). I still worry and I still shed tears from time to time, and maybe I always will. It seems to be part and parcel of being a mother.

Mothers Day 2008

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Out of the humidicrib

April 23rd, 2008

Today marks the first anniversary of an early milestone.  We came into the nursery on a Monday evening to find the humidicrib gone, and in its place, Talia lying asleep in an open cot.  We had no idea it was imminent and were almost beside ourselves with excitement.

The nurses said she was a hot baby (she still is) and they couldn’t make the humidicrib any cooler, so out she came! She was exactly 5 weeks old and weighed somwhere between 1.4 and 1.5kg.

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The last day of zero

March 19th, 2008

I’ve been feeling anxious and emotional all day, and as the hours went by and it came closer to the anniversary of Talia’s birth the feeling just became stronger until here I am now, mid-evening, sitting on the sofa with a box of tissues and wiping away the tears.

This time last year I was in a shared ward with other expectant mothers. I’d had an ultrasound in the late afternoon which showed my baby’s feet clearly pressing down on my bulging, partly dilated cervix. As a result I’d been told to go immediately back to bed, keep my feet up, and not get up unless I needed to use the bathroom. My hopes of going home in a day or two were dashed, and I anticipated a long, boring period of bedrest waiting for “Tic-Tac” to grow and hopefully arrive close to her due date.

My lower abdomen was sore, and I mentioned it to every nurse who came to check on me, but each time they felt me they said it was still soft and it was nothing to worry about. I remember I was in tears that evening too, because I’d asked if they would call my mother if anything happened (like me going into labour) and they said they couldn’t guarantee it. I felt lonely and miserable. Around 11pm I felt I was unlikely to sleep with the pain in my abdomen and rang to ask for some panadol. The nurse who arrived to see what I wanted felt my stomach and immediately called for someone to take me down to a labour ward. As they wheeled me out I was begging them to call my mother.

Down in the labour ward I was in a big room by myself. I met a funky young midwife named Xena and was introduced to a handsome young surgeon whose name I forget, but in chatting we discovered we had both gone on student exchange. My labour pains were intensifying and they offered me morphine. Not knowing how long I would be in labour, and being a total wimp, I accepted it. In retrospect it was the only thing I regret, because I was a zombie for the following 24 hours.

Not knowing if the nurses had called or not, I asked Xena if she would contact my mother. However no sooner had she started to leave the room than in came mum. A nurse had called and left a message when she was asleep and didn’t answer the phone quickly enough. However the number they said to call back on was a wrong number, so mum just assumed the worst and got straight into the car and drove immediately to the hospital and buzzed security to be let in. It was around midnight. I remember holding mum’s hand really, really tightly as we waited to see what would happen.

It must have been close to 2am when the surgeon decided that it was too risky to let me continue labouring. With Talia in the footling breech position, if my waters broke her body might easily slip out leaving her head stuck, and there was a real risk of umbilical cord prolapse - which could lead to brain damage or stillbirth. I don’t recall the exact sequence of events following that, but I was moved to an operating theatre. I can recall going through a series of swinging doors, like you see at the start of medical dramas on TV. I met a couple of friendly anaesthetists. One was almost a stand-up comedian, he just had one joke after another as he supervised his more junior colleague painting my back with a cold liquid before he put in the epidural. By this stage the morphine had taken effect and I was not in so much pain, but everything felt not-quite-real, as if I was watching it all happening to somebody else. Sleep deprivation may have also been to blame.

I met up with my mother again in the operating theatre. The room seemed to be full of people - two surgeons, the midwife, the anaesthetists, three people from the NICU. I remember that I could feel nothing from the chest down, but from the chest up everything was shaking uncontrollably, as if I was cold although I don’t recall being cold. I didn’t even feel quite so frightened by that stage, just numb and vaguely annoyed that I couldn’t stop my arms from wobbling like jellies. I would have liked to actually see what they were doing but perhaps it was better not to. Mum could see some of the action reflected in the big silver light over the operating table as she held my hand again. She told me about the big blood clot which was behind the placenta, and possibly the cause of my premature labour.

I had no idea how long it would take but was still surprised at how quickly everything happened. They started at 3am. Within minutes Talia was out and being bubble-wrapped by the NICU team. It took a little longer to stitch me back up again, but even so it wasn’t long. A NICU person held a pathetic wrinkly red-faced bundle near me and I reached up to brush a finger on her forehead before they whisked her away. Mum stayed with me in recovery, but I only recall recovering long enough to finally fall asleep.

When I woke up it was morning, and the morphine was like a haze. I was in a private room, and someone had brought me a polaroid picture of my baby. I remember looking at the photo and feeling empty and slightly frightened because I didn’t feel any emotional connection, no rush of love, only blankness as if I was looking at a stranger’s baby. At the same time I felt physically empty too, because Talia had always been a wriggly baby who kicked regularly and I felt barren without the movement inside me.

The rest of the day was a blur. I recall very little, other than speaking to my stunned husband on the phone from Singapore, and my mother arriving with a bunch of striking blue orchids. In the evening I agreed for Talia to take part in a clinical trial, and someone showed me how to use a breastpump.

So much has taken place since then.

Today I made a cake, blew up balloons, got ready for the big day tomorrow. My husband is in Singapore again and it all seems a bit unreal. To celebrate the last few hours of her last day of being zero, I packed a bottle (of milk for Talia) and bought some takeaway and we sat in the park in the twilight and watched the ducks and the dog-walkers together. It was incredibly peaceful and such a beautiful contrast to the same night last year.

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This day last year

March 17th, 2008

It’s mid-evening, March 17.

This time last year I was lying on a hospital bed in a delivery room, two monitors strapped across my belly and a machine next to me like a seismograph printing out the magnitude of my labour tremors.  I think my legs were probably trembling just as badly, they certainly felt like jelly earlier in the evening when the head of the obstetrics department told me I could be having a baby within hours.  I was really, really frightened, and hoping against hope that the medication they had given me would stop my labour so I could go home until my baby was actually big enough to be born properly.

Tonight I baked sesame shortbreads for Talia’s birthday on Thursday, and read a lot of chatter posted by other premmie mothers who I now think of as friends, even though I’ve met almost none of them in person.  Things didn’t go to plan last year, but thankfully, like the best sort of stories, it seems to have all turned out OK.

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First week flashbacks

March 5th, 2008

Yesterday my menstrual cycle returned for the first time in 18 months. It caught me by surprise, great clots of blood in the late evening, and the only thing in my drawer was the remainder of the packet of enormous chunky pads I had been using immediately after giving birth. I lay in bed and memories of that first week of Talia’s life floated to the surface, almost as if they had been hiding in the packet.

It was so surreal, it felt like a dream even the first time around. The wheelchair and the catheter, and the syringe you squeeze to inject yourself with more pethidine. The bruising and the bleeding. Not wanting any visitors, not wanting to see the alien full term moon-babies in the ward. The nurses waking me in the middle of the night for more pills and another blood pressure check. Clearest of all, the nursery with the rows of humidicribs, the glow of the fluorescent lights over the babies with jaundice, the incessant beeping and the bewildering array of monitors with their different coloured lines and the numbers constantly changing.

It was most eerie but most beautiful in the middle of the night, when I came down, sleep-deprived, to express at 3am. It was a world away from the same journey during the day. Walking through the quiet, seemingly empty hospital in my pyjamas. No visitors huddled in the corridor, no anxious grandparents and bewildered siblings, no tearful mothers being wheeled in to see their baby for the first time, clutching their parner in one hand and their camera in the other, nobody chattering about the mundanities of life, only the hushed tones of the night staff almost inaudible above the sound of the pump and the monitor alarms. The windows dark and the overhead lighting subdued although all the machines and the desk lights still glowed, like a scene from a spaceship. Through the porthole window, a tiny, translucent dream-child who should be curled up in the dark sea of my womb, not in this nest of wires and tubes. Her eyes were tightly shut, but her fingers gripped mine with an intensity which gave me so much confidence for her survival.

It felt like a dream, but no dream could be more amazing.

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Prem of the month - Miss January

January 6th, 2008

Talia (and I) featured on the Lil Aussie Prems January newsletter. A copy is available on the LAP blog.

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So close to losing everything

November 27th, 2007

The LAP forum had a thread running on “the hardest part of your NICU journey”. It made me think back to the long days of CPAP and desats (very tedious) and trying to establish breastfeeding (very stressful), and before that to the day I was discharged from hospital, leaving my beautiful, fragile little daughter behind in a humidicrib. It coincided with my “baby blues” day and I was more or less inconsolable, bursting into tears at the slightest thought of my baby. My husband couldn’t get me back to the NICU fast enough, he was so worried about me.

However, the single worst aspect of the entire journey, the part I would least want to go through again, was the evening I was admitted to hospital. It was the moment when they told me I might be having a baby within hours, when (knowing nothing about premature babies) I believed she was coming too early and would surely die, and my wonderful husband was away overseas, knowing nothing about what was taking place, and he could not comfort me as I lay strapped to the monitors, shaking and frightened.

Thank goodness for the miracles of modern medicine, for the drugs and the machines and the caring and technical skills of doctors and nurses, and (something we take for granted in Australia today) easy access to a clean, well equipped hospital where they have lots of experience in dealing with premature babies.

My grandmother went through this personal hell. No miracles. No baby.

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